Games Journal

September 2017

Happy Father

Crystal wrote a bit of one thing for you on this present day in September

Written on Friday, September eighth @ 2:35pm

Sitting in my bed room, searching the window, considering I have to get this replace completed to get the prayer warriors beginning up once more.

Glad Father’s Day… Crystal sporting purple together with her daddy.

The climate had a chill within the air yesterday which I need to admit will get me excited for sporting sweaters, watching soccer after which hastily it’s Halloween. Yep, I positive do like fall.

Considering of soccer, what an exquisite and considerate new custom the Iowa Hawkeyes have at their video games. Waving to all of these fighters within the Youngsters’s Hospital. Makes you tear up whenever you see it.

Because the final replace we solely had one scare, Crystal had been feeling sick with a continuing headache and had been having some again ache. She is a troublesome cookie however had sufficient and went to her household physician. Together with her medical historical past they wanted to rule out Most cancers within the her bones. We have been very shocked to even consider that, we thought it was only a flu bug that wanted some drugs to assist beat it. She was taken care of instantly by our fantastic household physician. After which we obtained excellent news, no Most cancers, it was in all probability a virus that lasted a bit of longer than she needed. However what a day/week of feelings.

Alanna and her thoughtful gift to Crystal.

Alanna and her considerate present to Crystal.

We additionally in the previous few months have celebrated Father’s Day, Cassidy’s (Crystals little sister) bought her 1st residence all by herself, Fourth of July, Crystal and Gage’s 1 yr Anniversary plus Rod and I celebrated our 27th yr Anniversary. In fact their have been birthday events, live shows, parades and festivals, loopy to assume how a lot life you could have lived in simply Three months. It sort of makes you assume ought to we be slowing down or is that dwelling life? What have you ever carried out within the final three months, I guess you’d be stunned and can overlook a few of the issues you could have finished or have lived via simply in that brief time period.

A considerate factor occurred in June for Crystal. There was a woman I met years in the past on my dance group. As she danced with me, I received to know her, I might even make her lunch throughout her breaks at school. We turned good associates and chatted on a regular basis. This woman, this pal of mine is known as Amy and she or he has a daughter named Alanna. Alanna graduated from highschool this final yr and her commencement cash she acquired, she graciously donated to Crystal. Such a sort considerate present from a younger lady simply graduating. Nevertheless, I feel Crystal was much more excited when Alanna began following her on Instagram as a result of see, Alanna is a Supermodel. Thank You once more for serving to Crystal. Thanks once more for making her really feel particular.

So in fact as a mother, I would like her to really feel particular once more as we prepare for the subsequent set of scans. Tuesday, September 19th is the large day. Your prayers, sort phrases, tales are so very welcomed.

And if you ship these prayers, these constructive vibes please throw in some additional ones for everybody that has been affected by the pure disasters. Might you even think about preventing Most cancers and dropping every little thing on prime of all of it. It breaks my coronary heart.

A observe from Crystal…

I often don’t like to put in writing in my caring bridge. I’m very grateful that my mom has a pure expertise in writing and may clarify our life’s journey by way of her eyes. She helps us get the prayers that my household and I want.

My mom on her wedding day July 1990 & Me on my wedding day July 2016. No the photo was not planned.

My mother on her wedding ceremony day July 1990 & Me on my wedding ceremony day July 2016. No the photograph was not deliberate.

Lots of you ask why don’t I write… And I say as a result of it doesn’t come naturally to me and explaining my life whereas I’m dwelling it may be miserable. Particularly when I’m going via chemo and surgical procedures on the time.

I often maintain my ideas to myself and once you see me I all the time have a smile on my face. Typically it’s a actual smile and different occasions it’s pretend. You’ll be able to’t be comfortable on a regular basis if you end up preventing most cancers.

A variety of you ask how I’m doing? Am I nervous? What does your intestine feeling inform you?

Thus far I’ve been feeling fairly good… just some again issues. My life is all the time loopy busy… that’s how I prefer it! So it leaves little or no time for me to fret about most cancers and ache.

Am I nervous?

I’m all the time nervous. You by no means know what the physician goes to inform you. My most cancers is so uncommon, totally different and complicated that you simply by no means know what they will say or what they will need you to do. The great factor about my docs on the Mayo Clinic is, I really like them and I belief them with my life.

So all you most cancers sufferers on the market and even those which are battling well being issues~ My recommendation that mother has all the time given me is to ALWAYS belief your intestine… In case you are questioning a physician, get a second opinion as a result of then once you get outcomes you don’t need to hear, you’ll know that you’re doing what your intestine is telling you to do.

My intestine feeling proper now… I’m not actually nervous about most cancers at this second… I’m simply making an attempt to prepare for CR Spirit Auditions on September 13… after these is when I’ll have time to fret about most cancers.

Once I go into my appointments I all the time get my thoughts prepared for excellent news, but in addition dangerous information. It’s Stage four Pancreatic Most cancers with a excessive grade neuroendocrine tumor… so you possibly can’t all the time put together for the perfect.

For many who don’t know what a excessive grade neuroendocrine tumor is and truthfully I didn’t actually know what that meant, a excessive grade neuroendocrine tumor is a kind of carcinoma. It’s a quick rising and aggressive most cancers. That’s the reason we go to the Mayo each 2-Three months so we will keep on prime of it.

With that being stated I’m very fortunate to nonetheless be alive. Again in 2013 we didn’t know if I might even make it a couple of years. And take a look at me right now. I’m 25 years previous. I’ve graduated school. Been on the CR Spirits Skilled Dance Staff for eight years. Married to the love of my life. Purchased an exquisite residence. And I’ve discovered a lot prior to now four years.. not nearly myself.. however about life. I want in my teenage years I might have recognized what I do know now. However that’s simply life that’s how we develop has individuals.

Getting ready for a new Season with the CR Spirits! It's gonna be the Spirits 25th Year Anniversary!

Preparing for a brand new Season with the CR Spirits! It’s gonna be the Spirits 25th Yr Anniversary!

Now lets get again to CR Spirit Auditions on September 13th! That is one thing I all the time look ahead too. It’s like a recent new begin into one thing I really like. Thank God for this dance group & studio. I don’t know who I might be immediately with out it. Mother you really have a expertise. I want each single child in Cedar Rapids might be part of this studio. It’s superb and I’m so completely happy it has been part of my life since I used to be born. I wouldn’t have it some other method.

So I’m going to wrap this up. I might love some prayers on September 19th. I really like listening to from everyone that week! And if I don’t get again to you it’s as a result of I get a lot love directly and I can’t reply to everyone.

Additionally I really like listening to different peoples tales and objectives in life. That’s one factor I’ve discovered about myself this yr. I really like listening to different peoples journeys… not nearly most cancers however life. It makes me completely happy. And I really like listening to peoples objectives. I feel that’s the reason I really like educating the Junior Spirits ages 13-16.. they only have so many objectives! It’s the better part about my Tuesday Nights!
Thanks for studying! Have an excellent day!

-Crystal Marie

One other miracle…

Written on Wednesday, September 20th @ 11:10am

FB Submit Monday Night time~  As I lay right here, preparing for mattress, making an attempt to not take into consideration tomorrow, my coronary heart races. I start to consider final Wednesday on the Spirit auditions. As we have been leaving the Studio after an ideal tryout Crystal says, “I’m so enthusiastic about this Season! It’s going to be one of the best! 25 Years Mother! And mother, if my Most cancers is again, properly… it’s gonna suck. It won’t break this Season however it’ll suck.” As I smiled at her I obtained into my automotive as she received into hers, a drive residence with tears in my eyes as I begged God, please no. Please no extra Most cancers. #cancersucks #myhero #myfighter #mydaughter #mydancer #pancreaticcancer #spiritfamily #crspirits

I slept so good final night time. Awakened early this morning, returned a few of your messages and fell again to sleep. It’s loopy how exhausted in the future at Mayo might be however like I stated to Crystal, that fear/stress can positive knock you out, and also you don’t even understand it.

The day began for me at Three:15am, what I didn’t anticipate was the horrible fog. As I drove over to select the youngsters up from their house for the drive to Mayo, I noticed how dangerous the drive was going to be. I started my praying, my begging for us attending to Mayo safely.

By the point we have been out of the Waterloo space, Crystal and Gage have been slumbering. My knuckles have been in all probability white from hanging on to the steering wheel. On the lookout for a potential automotive abruptly in entrance of me, to a deer operating out in entrance of me. Oh belief me, I chatted with God the entire time. I even appeared for the great. Let see, pouring rain or fog? Ice storm or fog? Snow storm or fog? Most cancers again or fog? Yep, fog gained every time. And eventually the fog lifted for the final hour of the drive to Mayo.

Issues have been in slightly totally different order once we acquired to Mayo. Nothing massive, simply we often begin with blood however this time we began with the MRI. Crystal, to be anticipated was somewhat on edge, quiet and took care of her appointments as Gage and I adopted behind her. I even tried to inform her, honey smile as a result of proper now, you’re nonetheless most cancers free, take pleasure in this second. Ummmm that went in a single ear, out the opposite 🙂

I choreographed a bit. Music always takes you away.

I choreographed a bit. Music all the time takes you away.

Crystal again within the MRI ready room made some pals, another fighters and loved telling Gage and I about them. Crystal liked their power. They have been constructive. And even one in every of them, Mark has his personal personal aircraft however needed to fly the airways proper now as a result of he’s within the strategy of getting a much bigger aircraft. He was very proud of Mayo as a result of his first analysis was not good. And the lady, she was from Chicago and was missed recognized so her Most cancers is now throughout her physique. She now has moved to the Waterloo space so she might be nearer to Mayo and can proceed to be on prime of her Most cancers so she will maintain preventing. Crystal I feel loved sharing her story too with others that battle, the place Gage and I do not know. I’m positive she then doesn’t really feel so alone.

After her checks, we had a fast snack, did some buying or I ought to say wanting, a late lunch after which it was time. Right here we go.

Thank YouThere was actually no ready this time. Crystal checked in, they referred to as us again. We obtained to the room and sat within the order we all the time do. We study we’ll meet a brand new physician to us however he’s on her group. We meet Dr. Mahipal. He’s variety. He’s constructive. He walks into the room with a smile. He introduces himself, we shake arms, he comes proper out and says, the scans look nice. And the three of us, sat with our mouths open. He stated, it’s excellent news. We nonetheless sat with our mouths open, with a slight smile. I assume shock. lol

They nonetheless see the spots in her liver, no change and unsure what they’re. Together with those in her lungs and a spot on her backbone. Now truthfully none of us had heard of the lungs/backbone ones. So I in fact had some questions however he assured us that they haven’t modified. And they don’t seem to be positive what they’re. So this appointment is sweet information. So rejoice, he stated in his accent, and we’ll see you in January. That’s proper, January! She is going to get to take pleasure in Halloween, Thanksgiving, Cassidy’s Birthday in Vegas, Christmas and New Yr’s Eve with no fear, no checks, no chemo, no most cancers.

Time to Celebrate!

Time to Have fun!

As we depart, we stroll down the hallway, we cease to catch our breath, my eyes start to tear up. And Crystal says, I’m so exhausted. She calls her dad. She calls her grandma. We video her sisters. After which a publish to Fb. Life is sweet. Now the drive residence to rejoice. A hour into the drive, I take a look at Gage within the evaluation mirror asleep. I take a look at Crystal within the passenger seat asleep. And I smile and assume did that each one simply occur. Thanks God for no matter journey that is I’m on.

Thanks for the messages, the constructive phrases, the playing cards, the flowers, the love, the prayers. Thanks God for guiding me on this journey. Thanks to her workforce of docs at Mayo, Dr. McWilliams, Dr. Pitot, Dr. Mahipal, Dr. Banck. Thanks to her workforce of docs at Household Physicians.

We all live another 3 months!

All of us reside one other Three months!

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